The International Fibrodysplasia Ossificans Progressiva Association, known as IFOPA, supports people living with the rare genetic condition FOP and their families. Founded in 1988 by Jeannie Peeper, the organization connects a community that can otherwise experience isolation. It funds research aimed at better treatments and a cure, develops research resources, and encourages collaboration among scientists and clinicians. IFOPA also provides education, practical support, and opportunities for individuals and families to share experiences. Its advocacy and awareness efforts help more people understand FOP and the needs of those affected. The organization works toward a future in which a cure is accessible worldwide.
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